Jasper’s Story Living with Cystic Fibrosis ISBN: 9781445156040
Published by Franklin Watts, 2017
Jasper tells us in his own words just what having CF means to him and how it affects his life. He gives us a simple explanation of what it is, and he tells us that he calls the mucus in his lungs ‘frogs’ because he has to cough it up constantly; if it is a pale colour, that is okay, but when it turns dark green, that means a hospital stay. We see him using his electric nebuliser, which puffs out steam, and he must do this several times a day. He also uses an acapella, a machine that vibrates his chest to help him cough up more ‘frogs’. School can be difficult because he has lots of tablets to take during the day, and the other children can be a little jealous of the fact that he must eat lots of fatty foods like chocolate. When he’s asked to sleepovers, he has to say ‘no’ because of the routines he must follow. We learn about his intravenous feeding while in hospital, which he confesses is boring even though the nurses are nice. Playing with his brother is good, as is his use of the trampoline because exercise is important, but he knows he must be extra careful about his medications because he has ‘never-ending frogs’ while his friends only have them occasionally with a cold. Simple but effective, Jasper’s story is realistic whilst also showing us a lively lad who accepts the way things are even though finding his restrictions difficult. Good illustrations are accessible and likeable. An excellent book for younger children, both for Cystic Fibrosis sufferers and their friends who will want to know and understand just why the Justins of this world must act as they do.
Age: 6+
Categories: